My Notes

More effective diagnostic tools have lead to a greater understanding of pediatric multiple sclerosis (MS), a disease that was, until now, believed to primarily affect adults. Multiple Sclerosis is now known to affect eight to ten thousand children under the age of eighteen, while still another ten to fifteen thousand suffer from what could be symptoms of MS. To help focus efforts to combat this disease, the National MS Society has established a network of Pediatric MS Centers of Excellence throughout the United States. Six such centers have been designated to date.

One of these newly-established centers is here at Stony Brook headed by Dr. Lauren Krupp. Dr. Krupp, professor of Neurology and Co-Director of the MS Comprehensive Care Center at Stony Brook, will serve as project director and will be responsible for successfully leading the center to meet the goals ¿of fighting to end the devastating effects of MS¿. She will also chair the Steering Committee that will ensure that all six centers work together by collecting standardized data and sharing resources to treat as many children as possible while setting a comprehensive care plan for pediatric MS patients now and in the future. This includes accurate diagnosis, treatment, rehabilitation, psycho-social issues as well as educational components. Additional information about the National Pediatric MS Center at Stony Brook is available at pediatricmscenter.org

Information provided by MSActiveSource.com

My Articles

Krupp LB, Belman AL, Cianciulli C, Milazzo M, Blitz K, Morgan T, Melville P: Clinical, demographic and cognitive features of childhood onset multiple sclerosis. Multiple Sclerosis (in Progress). Christodoulou C, Krupp LB, Melville P, Scherl W, Morgan T, McIlree C: Cognitive screening of MS patients recruited for a clinical trial. Multiple Sclerosis (in press). Krupp LB, Hyman LG, Grimson R, Coyle PK, Melville P, Ahnn S, Dattwyler R, Chandler B, Kornheiser L: A randomized, double-masked clinical trial studying the treatment of post-Lyme disease. Neurology (suppl) 58:A405 Cianciulli C, Krupp L, Belman A, Preston T, Morgan T, Mattis P, Blitz K, Wilson B, Novak G: Neuropsychological profile of children with multiple sclerosis: a pilot study to define areas of impairment and plan cognitive rehabilitation. Ann Neur (suppl)2001:75