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PEDIATRIC MS CENTER - RESOURCES


About The Center

Pediatric MS Center
CONTACT INFO
National Pediatric MS Center
Department of Neurology
Stony Brook University Medical Center
HSC T-12, Room 020
Stony Brook, NY 11794
(631) 444-7802
(631) 444-6438
Request an Appointment
Map & Directions

Pediatric MS Center Homepage

Resources

Teen Adventure Camp

The Teen Adventure Camp Program is the only camp in the U.S. specifically for adolescents between the ages of 11 and 18 who have MS.

This exciting life-changing program is offered by our Center in partnership with the recreational therapy professionals at Access2Adventure, a non-profit organization dedicated to improving the quality of life for persons with disabilities through sports, recreation and adventure travel.

Often for the first time in their lives, these unique campers are able to join in wellness activities such as kayaking, sailing and navigating a high ropes course, while building team spirit and confidence.

Most important are the peer relationships they are able to foster with other youngsters experiencing the same challenges. "I never realized that there were other kids like me out there" is a common refrain heard throughout the weekend.

The program, located at Canonicus Camp Retreat Center in Exeter, Rhode Island, and free to all who attend, draws participants from all corners of North America - from Alaska, Hawaii, and California to Florida and Texas to the New York metropolitan area.

Contact:Maria Milazzo 631-444-7802 for more information for this free, annual adventure.

Link: Teenage Adventure Camp

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Pediatric MS Center in the News

Pediatric MS Newsletter

News – "SUMMER SOIREE" RAISES $175,000...

News – DISCOVERY OF A GROUP OF PROTEINS...

News – Country Music Star, Clay Walker, Donates...

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Giving

As the National Pediatric Multiple Sclerosis Center moves forward with our mission, it is our hope that...

  • Every child and family will turn to our Center for the care and comfort they need when facing a diagnosis of MS
  • Every pediatrician and neurologist will learn that MS does occur in children, and that help can be obtained from our Center
  • Our research will advance our understanding of the disease for individuals of all age groups so that a cure is found

Today the work of our Center is generously supported by the National MS Society. The center is also supported by Stony Brook University Medical Center, Stony Brook Foundation, Stony Brook Research Foundation, The School of Medicine, and private foundations.

In addition, we have benefited from generous private donations and fundraising events. These monies support research programs as well as Teen Adventure Camp. Our goal is to build on these initial fundraising efforts to enable our Center to become self-sustaining — thereby ensuring that all children with MS reaching out to us will receive the care they need.

Link: Giving

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Clinical Research

The research goals of the Center include both basic scientific approaches and more clinical research applications. Our basic research includes identifying biomarkers of pediatric MS to assist in diagnosis and estimating prognosis. Other research is directed towards understanding metabolic changes in the brain associated with the disease. The clinical research program involves understanding the cognitive effects on children of pediatric MS to assist in school related interventions. We are also working with a national and international network of clinicians to better characterize the other clinical manifestations of pediatric MS. The multi-disciplinary and collaborative nature of the research activity from the Center is the best approach for finding answers to MS relevant to both adults and children affected by MS.

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